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What is Multiple Sclerosis?
Multiple Sclerosis (MS) affects the central nervous system – brain,
optic nerves and spinal cord…usually occurring in early adult life.
• When the brain receives signals, the spinal cord disperses them
to and from different parts of the body via a network of nerves (1)
• The nerves are surrounded by a soft, white, fatty protective sheath,
called Myelin. (2)
• With MS, Myelin breaks down (demyelination) causing disruptions
in nerve communications (damaged areas called lesions). This disruption
leads a slowing or blocking of muscle coordination, visual sensations
or other nerve signals.
• Multiple sclerosis, which affects an estimated 1 million people
worldwide, is considered to be an autoimmune disease, caused when the
body mistakenly attacks healthy nerve cells. Many experts believe that
somehow a virus triggers the mistaken immune system reaction that causes
MS.
What are the
symptoms of Multiple Sclerosis?
• Multiple Sclerosis inflicts serious, often de-humanizing effects
on its victims.
• Symptoms can vary depending on location of damaged nerves, so
no two cases of MS are identical.
• Initially, symptoms can last days to weeks; as the disease progresses
symptoms can worsen leading to permanent disability.
Primary
Symptoms
(Direct Result of demylination) |
Secondary
Symptoms
(Complications as a result of primary symptoms) |
Tertiary
Symptoms
(Social, vocational, psychological complications) |
| Weakness |
Disuse
Weakness |
Loss
of livelihood |
| Pain |
Bad posture
and trunk control |
Disruption of
relationships |
Numbness
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Muscle imbalance
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Depression |
Tremor
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Decrease in
bone density
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Loss of Vision
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Increasing risk
of fracture
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Paralysis
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Shallow, insufficient
breathing
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| Loss of Balance |
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Bladder/bowel
dysfunction
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Spasms
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The Many Faces
of MS
• MS is a devastating disease affecting approximately 500,000 in
the U.S. This number does not include the families and friends of the
sufferers who are affected psychologically, financially. MS affects
millions more around the world.
The many faces of MS change the numbers.
• One of the most common disabling diseases among young adults,
striking down victims during the prime of their
lives.
• The average age of onset is 25-35 years of age, but recent research
indicates the onset may begin in childhood. The disease can be severe
enough to cause great disability.
• It’s twice as common in women as men. Young mothers often
face dealing with this disease and the demands of child rearing.
The Costs of MS
In addition to the physical and emotional toll MS takes on those who suffer
from this debilitating disease - and their families and caregivers - there
are enormous financial costs to patients, their families, and our healthcare
system.
• In 1999, the National Institute of Health
gave MS the highest disability rating, yet MS receives the least amount
of money to support research for a cure.
• A 1998 study at Duke University’s Center for Health Policy
Research and Education found – based on 1994 data - the annual cost
of MS to be in excess of $34,000 per person with
lifetime costs of more than $3.2 million, translating into
a conservative estimate of national annual cost
of $6.8 billion! (cureMSnow!
believes that substantial progress to a cure can be reached for under
$5 Million in research funding.)
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